Latest posts
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Frameless
I have been clinging to a picture in my head of what motherhood was supposed to look like. What my child should act like. What our life should be. I didn’t even realize how tightly I was holding onto that “frame” until my therapist said something that stuck with me. “[D] is frameless.” I had
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Progress
Last year I took my daughter to see the live action Snow White after it had been in theaters for a while, hoping the smaller crowd would make it easier. I checked the seat map ahead of time, and no one had bought tickets yet, perfect! By the time we arrived, a few others were
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Finding Purpose
I’m learning to embrace the unknown and make peace with the day-to-day unpredictability that comes with this journey. Along the way, I’ve been deeply grateful for the incredible people who have supported my daughter and our family. My purpose in creating this blog is simple: to help others feel less alone in carrying the mental
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The Unpredictable Fish
Understanding the Journey Living a “simple” lifestyle as a parent of a child with special needs feels like navigating uncharted waters. Each day presents new challenges, often unpredicted. I know this to be especially true for parents of children with epilepsy, autism, or developmental delays. Balancing work and family life while addressing the unique needs
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Motherhood Unexpected
A week after my daughter’s first birthday, everything changed. She had her first observed seizure, though we didn’t know that’s what it was at the time. I was standing at the kitchen sink when I felt something wet hit my arm and noticed she was slowly collapsing out of my arms. I looked down and